Merrick was 4 years old in the beginning clip of this video. He’s 11 now — and he has fewer words and skills than he did back then. Sanfilippo syndrome causes childhood dementia. We work every day to keep him happy, protect the skills he still has, and share his story to raise awareness and keep hope alive for a cure. Follow our journey. Help us raise awareness. 💜 #ChildhoodDementia #SpecialNeedsParent #sanfilipposyndrome #LifeWithDisability #OurStory
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TikTokhope.for.merrick
Merrick was 4 years old in the beginning clip of this video. He’s 11 now — and he has fewer words and skills than he did back then. Sanfilippo syndrome causes childhood dementia.
Hope for Merrick(@hope.for.merrick). I Need Never Get Old - Nathaniel Rateliff & The Night Sweats. Merrick was 4 years old in the beginning clip of this video. He’s 11 now — and he has fewer words and skills than he did back then. Sanfilippo syndrome causes childhood dementia. We work every day to keep him happy, protect the skills he still ...
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got our hiking boots on
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got our hiking boots on
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❄️2081 Merrick Road, Merrick NY 11566 ❄️ @darwinmodel
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❄️2081 Merrick Road, Merrick NY 11566 ❄️ @darwinmodel
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BOO! 😱 #duet with @Jess
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BOO! 😱 #duet with @Jess
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This was before we knew my son has childhood dementia It is due to Sanfilippo syndrome, a rare progressive disease that causes brain damage over time I wish we could go back… to laugh a little louder with him love him a little harder And join the fight against this disease with all our strength before it had already taken so much 💜💜💜
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This was before we knew my son has childhood dementia It is due to Sanfilippo syndrome, a rare progressive disease that causes brain damage over time I wish we could go back… to laugh a little louder with him love him a little harder And join the fight against this disease with all our strength before it had already taken so much 💜💜💜
TikTokhope.for.merrick
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We are amassing a lifetime supply of medicine measuring cups. This is Merrick. He’s 11 and has Sanfilippo syndrome, a rare neurodegenerative disease that causes dementia in children. One symptom that has gotten worse over the past 6 months is headaches. 💔🤕 We only wish there was more we could do to help him 😔 #sanfilippo #childhooddementia #raredisease #headaches #approvehopenow
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We are amassing a lifetime supply of medicine measuring cups. This is Merrick. He’s 11 and has Sanfilippo syndrome, a rare neurodegenerative disease that causes dementia in children. One symptom that has gotten worse over the past 6 months is headaches. 💔🤕 We only wish there was more we could do to help him 😔 #sanfilippo #childhooddementia #raredisease #headaches #approvehopenow
TikTokhope.for.merrick
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Bumblebee has always been his favorite Transformer. 🤖🐝 So this couldn’t have been sweeter for him. Merrick is battling Sanfilippo syndrome, a progressive neurodegenerative disease often called Alzheimer’s for children. He deserved this win 🏆 #sanfilippo #regression #childhooddementia #bumblebeetransformers #makeawish
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Bumblebee has always been his favorite Transformer. 🤖🐝 So this couldn’t have been sweeter for him. Merrick is battling Sanfilippo syndrome, a progressive neurodegenerative disease often called Alzheimer’s for children. He deserved this win 🏆 #sanfilippo #regression #childhooddementia #bumblebeetransformers #makeawish
TikTokhope.for.merrick
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Merrick Summit Views
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Merrick Hanna Incredible TikTok Dances
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Recreating a few of my 2020 viral videos for my little brother! This was one of my biggest with 22m views! 🤯
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Recreating a few of my 2020 viral videos for my little brother! This was one of my biggest with 22m views! 🤯
TikTokmerrickhanna
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This was before we knew my son has childhood dementia It is due to Sanfilippo syndrome, a rare progressive disease that causes brain damage over time I wish we could go back… to laugh a little louder with him love him a little harder And join the fight against this disease with all our strength before it had already taken so much 💜💜💜
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This was before we knew my son has childhood dementia It is due t…
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TikTokhope.for.merrick
We are amassing a lifetime supply of medicine measuring cups. This is Merrick. He’s 11 and has Sanfilippo syndrome, a rare neurodegenerative disease that causes dementia in children. One symptom that has gotten worse over the past 6 months is headaches. 💔🤕 We only wish there was more we could do to help him 😔 #sanfilippo #childhooddementia #raredisease #headaches #approvehopenow
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We are amassing a lifetime supply of medicine measuring cups. This …
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TikTokhope.for.merrick
Bumblebee has always been his favorite Transformer. 🤖🐝 So this couldn’t have been sweeter for him. Merrick is battling Sanfilippo syndrome, a progressive neurodegenerative disease often called Alzheimer’s for children. He deserved this win 🏆 #sanfilippo #regression #childhooddementia #bumblebeetransformers #makeawish
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Bumblebee has always been his favorite Transformer. 🤖🐝 So this coul…
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TikTokhope.for.merrick
POV: your son likes the people mover almost as much as the roller coasters 🎢 Merrick is autistic and has Sanfilippo syndrome, a rare disease that causes childhood dementia. Slowing down helps us enjoy the time we have with him. A good reminder we don’t always have to move fast to get the best thrills.
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POV: your son likes the people mover almost as much as the rolle…
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TikTokhope.for.merrick
This is what childhood dementia looks like… This is Merrick, he has Sanfilippo syndrome and is regressing and losing more words and skills every day because of this progressive neurodegenerative disease. He is in a race against time to get treatment that could save his life. #sanfilippo #autism #childhooddementia #diagnosis #regression
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This is what childhood dementia looks like… This is Merrick, he ha…
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TikTokhope.for.merrick
I truly believe that without this disease, he would have taken the world by storm. This is my favorite video of 2026 (so far). My son Merrick is the most determined kid I know—driven, stubborn, and fiercely independent, no matter what Sanfilippo is trying to take away from him. Sanfilippo syndrome is a rare progressive disease that causes dementia in children. Here he is, proudly getting himself a drink of water from the sink. He has a little red reusable solo cup we got him just so he could kee
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I truly believe that without this disease, he would have taken the …
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TikTokhope.for.merrick
Sanfilippo syndrome has stages. My son is in the phase with extreme hyperactivity. This is as calm as it ever gets in our house. These are the days I will try to forever hold onto. #sanfilippo #childhooddementia #raredisease #hyperactive #autism
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My son has childhood dementia caused by a rare neurodegenerati…
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Snow storm = fresh snow to eat ❄️😆 Merrick is 11 and has Sanfilippo s…
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This is Merrick he’s 11 now and last year we found out he has Sanfilip…
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My son has childhood dementia because of Sanfilippo syndrome. …
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preventchildabuse.org
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Sundays are supposed to be lazy but in our house we have Sanfilip…
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My son has childhood dementia because of a rare disease called S…
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